Talulah Willis, the daughter of Hollywood star Bruce Willis, has shared some details about her father’s life after he was diagnosed with frontotemporal dementia (FTD) earlier this year. FTD is a rare and progressive form of dementia that affects the frontal and temporal lobes of the brain, which are responsible for language, behavior, and personality.
Talulah, who is the third child of Bruce and his ex-wife Demi Moore, told Vogue magazine that her father is still able to move around comfortably and always recognizes her when he sees her. She said that he can be found on the first floor of the house, in the kitchen-dining-living room area or in his office, where he listens to music and writes down things that interest him.
She also revealed that his office is a window into his mind, where he keeps various items that he has collected over the years. She said that she once found a scrap of paper there on which he had written “Michael Jordan” and wished she knew what he was thinking.
Bruce’s current wife, Emma Heming Willis, also spoke about his condition and how their two daughters, Evelyn and Mabel, are helping to care for him. She said that Evelyn, who is nine years old, learned from a YouTube video that people with dementia can suffer from dehydration and decided to make sure her father drinks enough water.
Emma said that she was moved to tears by Evelyn’s gesture and that she is proud of how her children are coping with their father’s illness. She said that they call him “slay”, which is short for slayer, because they think he is cool and strong.
Bruce’s family announced his diagnosis in February, after initially thinking that he had aphasia, a disorder that affects communication. They said that they were relieved to have a clear diagnosis and that they wanted to raise awareness about FTD, which affects around 60,000 Americans.
Bruce retired from acting after he was diagnosed with FTD. He was previously known for his roles in movies such as Die Hard, The Sixth Sense, Pulp Fiction, and The Fifth Element. He was also a singer and released several albums in the 1980s.
His family said that he always believed in using his voice to help others and to bring attention to important issues. They said that they hope his diagnosis will inspire more research and support for people living with FTD and their families.